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THURSDAY, NOVEMBER 19, 2015 NORTHUMBERLAND TODAY.COM A pâ€"â€"m__â€"â€",â€"â€"_â€"â€"â€"‘â€"_â€"‘_.x Keeping Grace‘s legacy ali PETE FISHER se ta s A > Saf 6 NORTHUMBERLAND Topay youe !â€" M . j . e â€" ¢ GRAFTON â€" Grace Bowen‘s | woiths f \ Aptnoteae on > C « memory is being keptalive through c y t i es f a 5& ‘F%fi the efforts of themanypeoplewho _ _ _ . . > es p | gave her strength. . & E: c 4c g. « -:’-{-:;:/c, Grace captured the hearts of jae , F * 3 ye k communities in Northumberland Sheaiet f County and beyondduringherbatâ€" $ 4 $ 2 . tle with cancerthat was diagnosed * s iss 4j s s in early 2014. s c d The Grade 4 student at Grafton ‘ sc p . mild > Public School loveddancing figure _ _ 33 # â€" C _ | skating, soccerandswimming. But _ 5 E p is most of all, Grace loved hockey: se â€"â€" zd Gracehadcountlesschemotherâ€" _ || d _ \ 4 apy treatments during her battle 4 s ; with osteosarcoma. i } In July 2014 she had surgery to . | a P F es remove the tumour, which resultâ€" " n oo w2R _ ed in the amputationofpart ofher E _ y w leg. Her ankle was then reattached e â€" : y aAsa= +. 3 I to createanewkneeinpreparation %C . .. nys j [ :. 44 for a prosthetic limb. J y <5 # :# The popular nineâ€"yearâ€"old I e % j 2. :~ played for the West Northumberâ€" 3 is es â€" o + 4 land Wildgirls hockey teambefore e k -';i j . it she was stricken with the disease es 5 e S P se e c l ul i d that would take her life on March w e â€" k ewime®" . ol c e it 13, 2015. 5 s s â€" > e â€" In her short battle, Grace capâ€" hss <> i ow § > F ®~â€" tured the hearts of thousands of . s > c c hoe = * e > people, from celebrities to athâ€" "wesee heâ€".<< Wt ts letes including National Hockey A fwes > i>â€" $" League players. d * § s Since Grace‘s death her parents, esew: o xk % e Greg and Andrea, and sister Macâ€" te | * s 4 _ Kenzie have wanted to find a way f" M 3 < «i ® " to create a legacy to keep Grace‘s M .. * e $ * g § memory alive. I 2 " S . "We pondered for a long time . > m _#A @~"~3 4 what to do with the money the ~& â€" F4 a communities, both locally and inâ€" es xt T f * ternationally, raised for Grace in : tPle ‘% P #. her honour," said Andrea. J ' U I N f "One of the things we have done s t _ F\ 8 2711 . \Mewe is create a tribute fundat Sick Kids PETE FISHER / NORTHUMBERLAND TODAY FILE PHOTO to give back to the hospital." Nineâ€"yearâ€"old Grace Bowen was greeted by friends and teammates when she attended the Oct. 13, 2014 Cobourg Cougars game. Duringthe summer, the Bowens met with Lisa Charendoff, managâ€" _ terest," Andreasaid. The child life specialists use play _ On Oct. 27 the Bowens metwith _ theirfamily, friends, communities er of the Ambassador Program at Theresearch looks atthe behavâ€" . as a tool for socialization, prepaâ€" _ Hopyan, Grace‘s orthopedic surâ€" _ in memory of Grace to the Child Sick Children‘s Hospital, and Colin _ iour ofembryonic cellsand howit _ ration, expression of feelingsmorâ€" _ geon and a senior scientist in deâ€" > Life Department at Sick Kids to Hennigar, director, Major Gifts at . relates to sarcoma.cells. malization and learning. velopment and stem cell biology. _ help them purchase iPads and to Sick Children‘s Hospital, at their _ Sarcoma cells spread by leaving _ "T can‘t say enough how grateâ€" _ "Wewereinaweofhisresearch," . assist in fundinga program which home in Grafton. the main tumour in small groups _ ful we are for this program," Anâ€" â€" Andreasaid. connects pediatriccancerpatients | "The first meeting we just did â€" that contain few cells. Thesecells . drea said. After a tour of his lab in the Peâ€" across Canada on a safe and supâ€" somebrainstormingof what could _ coâ€"ordinate their behaviour such _ Grace had many child life speâ€" â€" terGilgan Centrefor Researchand portive platform. be done to honour Grace," Amdâ€" . thattheycrawlawayfromthemain _ cialists she was fond of and who _ Learning the Bowens presented a Some of the money raised rea said. tumour andenter small veins that _ helpedherwithmany things â€"from _ cheque for $40,000 on behalf of _ throughout last year is also being CharendoofandHennigar began. _ transport them to lungs. preparing to get a feeding tube _ their family, friends and commuâ€" _ used to help other families going working together a detailed proâ€" _ "By applying what we know _ through her nose to her stomach, . nities who helped raise money in â€" through similar situations, Andâ€" posal in the coming weeks which .. aboutembryonic.cells, wecan unâ€" . to distracting her during stressful . memory of Grace. rea said. included several ideas. derstand how sarcoma.cells coâ€"orâ€" _ times, playing with her, visiting, "We know these funds will have __ "Weareso thankfulandgrateful‘ "One of the items that really inâ€" â€" dinate their movement to distant _ holding specialartdays or providâ€" â€" a tremendousimpactinadvancing. . to all those that continue to supâ€" trigued us was a project led by Dr. _ sites and abort that process," Anâ€" _ ing distractions in waiting rooms _ Dr. Hopyan‘s research to move us: . port us during this time," she said. Sevan Hopyan who also happens . dreasaid. for surgeries. closer to understanding this horâ€" _ "We want to thank everyone who to be the amazing orthopedic surâ€" _ "Itsoundseasyenoughintoday‘s _ "Contributing to this program _ rible disease," Andreasaid. made donations on behalfof Grace geon who did Grace‘s amputation _ dayandage,butyears andyearsof _ also intrigued us and we know "Grace inspired so many adults _ at her funeral." â€"rotationplasty â€" toremovehertuâ€" _ research arestill needed." Grace would want to be a part of _ in her short life, but she also inâ€" _ The Bowens said they will enâ€" mour," Andrea said. Funding research is a top priorâ€" _ it," Andreasaid. spired children and she always _ sure Grace‘s memory is kept alive Learning about the disease, she _ ity for the Bowen family, but they __ The Bowens made the trip to . wanted to help. in many ways. found that osteosarcoma is a rare _ also want to help the children at Sick Children‘s Hospital to reâ€" "She had such deep concern for _ "Onewaybeingisto continueto cancerthatis severely underfundâ€" . the hospital. view a proposal and go over speâ€" â€" otherchildrenand whatthey were _ support the worldâ€"classresearch at ed. Child Life Programs focus on the _ cifics, Thenextstep was to setup a _ going through at Sick Kids." ‘ Sick Children‘s Hospital," ‘ "So helping out with this reâ€" â€" socialandemotionalimpactofillâ€" _ meetingwith Hopyanto talkabout The family made an additional . pete.fisher@sunmedia.ca R | (7 search definitely piqued our inâ€" . ness and hospitalization. his research. donation of $5,000 on behalf of _ twitter.com/NTpfisher